About Us

Services

Our Pledge

Your Rights

More Resources

In the News

Accreditation

Contact Us

Home

Reprinted with permission from the
Wilmington (Delaware) News-Journal June 15, 2008



Rob Kislow of Bethlehem, Pa., is fitted for a new leg at Independence Prosthetics Orthotics in Newark. Kislow lost his leg after being shot multiple times by a sniper in Afghanistan in 2005.

Photo by Robert Craig, News Journal

Artificial limbs keep
amputees on the go

by Kristin Harty

Bob Kislow arrived on a Harley, his high-tech prosthetic leg hidden beneath blue jeans and steel-toed boots.

Turning heads with his Mohawk and tattoos, Kislow strode with an even gait into the prostheticist's office, a visit he'll make regularly for the rest of his life.

Just 22, the Army veteran lost his lower right leg in 2005 after being shot five times by a sniper during a 10-hour firefight in Afghanistan.

Three years later, he's back on his feet in earnest. He's gone skydiving and rock climbing, played paintball, raced motorcycles and golfed.

He changes artificial legs like most people change socks.

"I jumped out of the Jeep from doing some interior work," Kislow, an auto-shop worker in Bethlehem, Pa., explained to Newark prostheticist John Horne. He held up the metal foot that needed repairs.

"[It] flipped forward ... the band loosened up. It must have been from riding that motorcycle ... "

Adventurous and adaptable, Kislow is one of more than 750 men and women who have lost limbs in Iraq or Afghanistan -- a small, but highly visible percentage of the estimated 185,000 people who undergo amputations every year in the United States.

Studies by the Amputee Coalition of America show that 82 percent of amputees in the U.S. lost limbs because of complications in the vascular system -- problems usually associated with aging.

Use of Devices Soars
in Wartime
Number of Iraq and Afghanistan veterans using Veterans Affairs' prosthetics or orthotics, which supplement weakened limbs:

1,437 in 2003
3,928 in 2004
4,341 in 2005
22,910 in 2006
37,491 in 2007

Source: "Prosthetics in the VA: Past, Present and Future," February 2008 report by the U.S. Naval Institute

By the Numebrs

During fiscal year 2007, the VA system provided veterans with the following:

8,058 legs $46 million

380 arms $2.5 million

86,945 wheelchairs, scooters and accessories $122 million

348,920 hearing aids $122 million

769,522 eyeglasses $35 million

Source: "Prosthetics in the VA: Past, Present and Future," February 2008 report by the U.S. Naval Institute
But most 21st-century war amputees are in the prime of their lives. And unlike the wounded returning from Vietnam and World War II, they have access to a rapidly evolving array of high-tech prosthetics, from mechanical knees to myoelectric arms.

"These younger vets want to get back to work, get back to sports," said Reema Malhotra, physician and director of the Elsmere Veterans Affairs Medical Center amputee program, which has begun shifting its geriatric focus in anticipation of caring for Iraq and Afghanistan vets. It hasn't treated any yet.

Ironically, war -- the cause of so many amputations -- has historically accelerated improvements in prosthetics, with the military leading the way in research, sparing no expense. Last year alone, the Department of Veterans Affairs spent almost $50 million on artificial arms and legs for the 8,400 vets who needed them.

"If there's one good thing that comes out of this war, there's going to be a huge advancement in prosthetic componentry," said Frank Austin, a physical therapist at Christiana Care Rehabilitation Services and Therapy.

The latest limbs are "actually powered up, moving toward the bionic stage," Austin said. "That's exciting for my generation, who grew up watching the 'Six-Million Dollar Man.' "

But the high-tech limbs aren't practical for many amputees, regardless of their age.

And all the bionics in the world don't make it easier to lose a limb.

Giving up is not the answer

Kislow was 19 and still growing when he got shot in the right heel, right arm, head, back and side during fierce fighting in Paktika Province. A sergeant in his unit, Victor Cervantes, saved his life, shooting the insurgent who had shot Kislow. A second insurgent shot and killed Cervantes. Kislow then shot the second insurgent, using his left hand.

Cervantes' name is tattooed on Kislow's right arm, as is the name of his Army unit -- 82nd Airborne -- above a skull with wings.

When Kislow awoke from surgery with his right leg gone below the knee, he was angry, then defiant.

"If you lay in bed and feel like you wish you would have died, you're going to die," he said. "If you say, 'I want to go out there and kick more ass,' you're going to go out there and kick more ass."

Eugene Smallwood felt a little less gung-ho. He watched his foot turn purple a few years ago and knew it couldn't be saved. Later, after his stump became infected, surgeons took off his lower, then upper, leg.

John Horne, owner of Independence Prosthetics Orthotics, fits Eugene Smallwood of Newark with a prosthetic leg.

Photo by Robert Craig, News Journal

"I was so depressed, it was pitiful," said Smallwood, now 61, an Army veteran of the Vietnam era. Like all of the 36 patients at Elsmere's VA medical center who lost limbs last year, he has multiple health problems, including diabetes and peripheral artery disease.

"I got more depressed when they went above the knee than below the knee. ... I still get depressed. That's just part of life, I guess."

Members of the Amputee Support Group of Delaware try to help people like Kislow and Smallwood adjust. Regardless of how it happens or at what age, losing a limb has the potential to destroy a life, said Rick Hofmann, who survived Vietnam but lost his leg in a motorcycle accident in North Carolina.

"The emotional aspect of it is rarely talked about," said Hofmann, who is certified by the Amputee Coalition of America as a "peer group member" and visits with new amputees to offer support. Not everyone is able to adjust. Last spring, one man committed suicide.

"Who knows what pressures build up and from which direction?" said Hofmann, who wishes information about the support group was more readily distributed by area health professionals. "You never know what is in a person's soul. ... But the peer group can act as a safety valve. If you're having a panic attack at 3 in the morning, you can pick up the phone and talk to someone who's been where you are."

Hofmann didn't waste much time learning how to adapt to his "abbreviated" condition. "You start where you stand," Hofmann said. "Yeah, it's inconvenient as hell, and it sucks, but what's next?"

Earlier this month in Horne's office, Smallwood stood with a walker to try a prosthesis for the first time. He hadn't walked in almost a year.

"Just take your time," said Horne, who opened Independence Prosthetics and Orthotics in Newark last September. Now 33, he lost his right leg below the knee after he had bone cancer when he was 15. Last year, he ran Newark's Main Street Mile, using a special prosthesis designed to withstand the impact of running,

Anxious and unsteady, Smallwood struggled to push his hip forward so the artificial knee wouldn't buckle. But he was stiff and uncoordinated after sitting in a wheelchair for almost a year. Horne made adjustments to the hydraulic joint, using a tool similar to one used for bicycle repairs.

Eugene Smallwood, who has various ailments including diabetes and peripheral artery disease, had his leg amputated. John Horne (left) also wears a prosthetic, having had his leg amputated after a bout with bone cancer as a teenager.

Photo by Robert Craig, News Journal

After two trips down the 6-foot corridor between the parallel bars, Smallwood was frustrated and out of breath.

"Can you just let your pelvis kind of roll forward?" Horne asked, crouching at Smallwood's feet to observe. "Let your weight come through. ... You feel like you're really putting weight through?"

"Oh, yeah. I feel it on that bone."

"Where do you feel it on the bone? In the front?"

Winded, Smallwood blew out his breath.

"How you doing?" Horne asked.

"Doing good," Smallwood said, stopping to rest.

"Do you see where the potential is here?"

"Oh, yes."

It will probably take Smallwood about six months to get comfortable with the new limb, as Horne continues to adjust it to accommodate for swelling in the stump. The VA, which provides all the latest and most expensive technology for veteran amputees, picks up the $19,000 tab.

Gone are wooden, 'medieval' ways

It wasn't always so.

During the Civil War, when an estimated 30,000 amputations occurred on the Union side alone, the government provided primitive wooden socket limbs that cost about $100. Kislow researched the history of prosthetics during his two-year convalescence at Walter Reed.

"These dudes were coming back, their legs blown off by cannon balls," he said. "I really don't understand how they did it. ... Back then, all they did was carve a piece of wood. It was uncomfortable, and most people chose not to wear them. They rode around in makeshift chairs or wheelbarrows. Their sons pushed them around in wheelbarrows."

During World War II, thousands of vets stood in long lines to receive poorly made prosthetics, prompting Congress and President Harry Truman to reorganize what one general called a "medieval" VA system, according to a February 2008 Naval Institute report on the history of prosthetics in the VA.

By the end of the Vietnam War, some prosthetics were controlled by electronics. But until a little more than a decade ago, most prosthetics remained fairly rudimentary, said Christiana's Austin, who has attended conferences to learn how to work with younger war amputees.

"When I got out of school 15 years ago, an artificial leg was literally a piece of plastic on a metal pipe, with a hinge joint like a door," Austin said. "Almost like a pirate on a wooden leg."



Though advances in the field have been dramatic, most amputees don't qualify for the high-tech artificial limbs, which require candidates who are already very active and function well with an ordinary prosthesis. Smallwood, who hopes to one day return to work at an auto shop, won't be ready to rock-climb with a prosthetic any time soon.

"I know I'm going to be restricted somewhat," he said. "But I'd like to be able to go to the store without somebody coming with me to make sure I get into the handicapped cart. ... I'd like to be able to go fishing again."

Other candidates for the latest prosthetic technology can't afford it. The Proprio foot, which some refer to as "bionic," costs about $15,000 and isn't covered by most private insurance policies. Others -- veterans who qualify for the technology and can count on the government to pay for it -- think the mechanical limbs are more trouble than they're worth.

"The computer technology is not for everyone," said Stephanie Beaman, a physical therapist at Elsmere's VA medical center. "They have to be tech-savvy to use computerized limbs. ... They have to remember to charge their leg."

Rob Kislow of Bethlehem, Pa., is able to cruise around on a motorcycle with his prosthetic leg.

Photo by Robert Craig, News Journal

And some of the youngest and healthiest war amputees, like Kislow, simply push their bodies too hard.

"He's so active, he would probably break it," said Horne, who tried the bionic foot himself, but broke it after just a week. "That's the problem with the new technology -- it's great that it's out there, but it's not entirely functional. He would break it. Definitely."

At home in Bethlehem, Pa., Kislow's friends call him "Tin Man" because one time he blew out a valve on his artificial leg, causing it to creak and hiss while he walked.

As he left Horne's office, Kislow offered to do a "burnout" on his 2008 Super Glide Screamin' Eagle, which he started riding a few months ago. Yes, he brakes with his artificial right foot.

"I can't do it exactly the way I used to do it anymore, so I find 10 other ways to do it," he said. "It's amazing how the human mind works, how you can see tunnel vision, but then that tunnel's gone, you can see a bigger picture ... "

Reluctantly skipping the burnout, Kislow hopped on his bike and roared off, without a helmet, toward home.



Amputee Support Group of Delaware

More Amputee Resources


31 Meadowood Drive  Newark, Delaware 19711
302 - 369 - 9476  fax 302 - 369 - 9060 
Office Hours 8:30am - 5:00pm               Monday thru Friday
For your convenience, please call to schedule an appointment
Copyright . Independence Prosthetics - Orthotics, Inc. All rights reserved.